So yeah still got Lung function to have and already I can tell results will be lower and just getting ride of all the crap in my system, at least I'm wanting to eat a little now tho still breathless. That's why I went in a wheel chair when transferring wards yesterday, physio are gonna try and get me back into excise soon so I should be okay, even if it's just a walk.
Ah... Weekends in hospital, they’re alway quite. Tho I am still quite busy trying to get better.
The good news is I am feeling a bit more like myself ( I’ve got my sarcasm and cheek back
). Appetite coming back a bit more feel a bit more like eating and snacking now. And I have more good news, my Flu is no longer contagious so I’m getting people visiting me normal now and it feels nice, the masks and gowns were creeping me out a bit.
I’ve also had my Lung Function and yes I was right results are lower. Gone from 71% down to 53% so yes it’s low but thats because of the Flu I’ve got. Also heard it will stay in my system for at least 6-8 weeks. So it’s really important that we get physio, excises, IVs and meds back into my system and get me at a most healthy way as possibly with my CF.
Speaking of excises, forget the whole "just a walk" thing, nah I’ve been building up speed on an Excises bike in the CF Gym; and DAMN dose it feel good to get back into excises! Especially because it’s been 3 weeks since I’ve last done running.
So yeah but apart from that I’ve just been in a room mostly sleeping, watching TV, coughing ( a lot), building a Chardizard, hugging meh plushies whiles being in a bit of pain and playing Super Mario marker 3DS and Rhythm Praises Megamix (which I’ve almost completed). So yeah.
All I know is next week this usually happens but I’m gonna start getting a bit bored and initiate with things since I’m in Isolation (can't leave the room). Tho the room does NOT help sometimes, makes meh sleepy and just...
Tho the good news is that Mum kindly brought my computer in so I can start replying to some of the nicest comments I’ve seen in a while and if my motivation is okay, Roleplay. But yeah I’m probably in till the 14th maybe depends if my SATs decided to pick up and my chest is a lot better. ( At least I’m not getting chest pains anymore).
So yeah. ( HUGE UDATE)
Well already feeling home sick
But I’m doing okay, this usually happens in the start of the second week of IVs. Anyway health wise is getting a lot better, I’ve had another Lung function and results are slowly going up, blood test come back and show that my Flu/virus levels are coming down so that good. I’m not feeling as much symptoms as before but I’m still peeky over food and just more tired still.
Also the last few days have been a bit of a struggle, my port/gripper needle ( the Awkward port it is) decided to make it harder for them to draw back blood for my blood tests and it causes an issue with flushing so yesterday IVs times we’re all over the place. Lucky it’s fixed now and they we’re still able to get blood out of me, besides nurses know if you are needle phobic if you have a portacath instead of long lines and canulars. *shivers thinking about them and the past* And turns out they have to push down on the needle to make it flush faster since it’s stiff. Great
Not only that BUT MY LEFT SIDE IS ACKING! I can’t scratch, I can’t lie on it cause it hurt and the dressings making me a bit itchy. Gah! Also if there is blood stuck in the line and I see it, lets just say I’ll be in panic mode
But like I said it seems to be okay now, at least IV’s are easy peasy
. (even if i can’t go anywhere for a while.) Also more Tobi levels done today hooray?~ ( I hate having them done but the prick isn’t as bad so…Why am I so anxious?!) But I've had them done now I'm just waiting for the results and to have my tobramycin later on this evening.
Now I have also been for my ENT appointment this morning and saw the results of that CT scan I had back in December. I’m afraid it’s bad news. Looking at the CT (which is so weird btw) shows that my left nasal polyp is bad and blocking most of my noes and now my right if going the same direction. So after trying 4 nasal sprays and a bunch of nasal drops, nothing has worked. So…
I’m afraid I’m gonna have to have them surgicaly removed once again. They did say they come back every 5-7 years so great. Tbh I knew it would lead to needing another operation on my noes at some point. So I don’t know when I’ll have that? but I asked a bunch of questions this morning and yes it’s done under General anaesthesia and I’ll be on the CF ward for coming in and recovery. Plus anaesthesia needs to be motored carefully in Cystic Fibrosis and see if my chest is well enough for the operation. It probably will be.
So I don’t know when this operation will be, could be February, March, April idk. But yeah. So apart from that, that’s whats been happening.
Saw a doctor this morning during ward round and they have said that I will need another Chest X-ray to hopefully see some improvements and they said a few more days of IVs my Lung functions still isn’t where they want it to be, so a few more days possibly be out by early next week. So yeah.
Now if you excuse meh, I’ve got lunch to eat. *tucks into a toasted bacon sandwich*
( lost track of days/dates XD) 14/1/17:
Well it's been 13 days now of my 14 days of IVs treatment. And in myself I'm probably feeling the best I've been for like WEEKS! I'm eating more and finally got muscles back in my legs to then give me the passion to wanting to start running again when out. Which I will get onto in just a minute.
The last week I've started at like 10 minutes of excise and today managed to get back into 30 minutes (which is what I aim for each day (( okay it's 20-30 minutes of excise)) ) and it felt good to also add in some 30 second sprints, we see that my sats seem to be coming back to normal including my oxygen levels however, during this time my blood pressure is still low, now I'm not sure if thats because I just have a low blood pressure to begin with or it's to do with the Flu that is still in my body. But nobody is worried about it and it seems normal now so yay. Weight is also up by 2 pounds (since I lost 4 whiles being ill) so yes at least I'm eating again and I'm gonna work on putting weight back on. As for my diabetes, seems normal now tho my fingers hurt from all the blood sugar motoring I've been doing ( it's every meal when in hospital). So thats health whiles.
Doctors seem to be happy with my results now and that my Influenza is no longer symptomatic or contagious and the 2nd X-ray shows some clearance. So...
This means I might be discharged tomorrow ( Sunday evening). HOWEVER, it depends on one test my lung function. But tbh it's looking like I'm leaving cause the number they want me to get I am so close to. Besides already heard they are sorting out my discharge letter plus I...*sighs* Although the staff are really lovely and so is the unit I still wanna be at home with my family. So I'm hoping it's tomorrow. But in a way it's looking like my course of IVs and time in hospital should be ending tomorrow.
Then no hospital till February cause all the appointments I was going to attend have all been done or moved, clinic will be 3-4 weeks after addition to see how I'm doing. Then I guess...It's just planning and being prepared for this operation I've gotta have, my Anxiety might calm down about it soon (maybe when I get a date for it) but Doctors are now aware that I'll be back for that. And monthly port flushes.
But when I get out and back at home. I AM SO DRAWING! I miss my sweet sets of promarkers, pens and creativity and motivation however a New years resolution for me this year is this...
I am NO longer going to tell you guys what I'm drawing or keep diaries of it. Cause half of the ideas I have DON'T get done and I feel like I disappoint people when artwork I've planned never comes out. So I'm keeping things quite and maybe I'll show a art progress. But for now I wanna get back to some artwork I've been wanting to do for a while. So yes.
But when I get home it's artwork, heading back to the shop ( I miss it and the staff), helping around the house, driving, theory and running! So yes. Hopefully, I'm allowed out tomorrow.
* Writing this now so I don't have to write a home journal tomorrow and about my health.*
...I'M HOME NOW!!! They let me go cause my results reached the target! And DAMN does it feel good to be back home.
But I just wanted to say thanks to everyone who commented on this journal and that you guys didn't mind me blogging my time in hospital as this was my first time in the Adult ward after the transition from times in the children's ward. Plus I know quite a few people here who do worry about meh when I fall ill.
So yeah, SJ's back to her good self and will get back to working on some artwork as I miss drawing.
So yeah. It's good to be back home and own bed and just life. Tho these things happen to me and I know what to expect now that I've stayed with the CF ward so if it does happen again I won't be to anxious.
So again, thanks guys.